At Home Allergy Scare!

Last week I awoke to a voicemail and a 5 part text from a childhood friend starting with “I called the pediatrician!”  In a panic, I read on…

The good news? Her son is fine.

The bad news?  He suffered an allergic reaction.

Earlier in the evening, her son and husband ate a bowl of ice cream at home.  Shortly thereafter, her son, who is allergic to peanuts, complained his throat “felt tight”.  My friend immediately gave him Benadryl but unfortunately did not check the ingredients of the ice cream, assuming that it was safe.

His symptoms subsided.

Next she called my cell phone, which unfortunately was off, and left a voice mail.  If only she had called my home number, I would have told her to check the ice cream ingredient label and to follow his Food Allergy Action Plan if the allergen was present.

His throat tightness returned.  She called the pediatrician whom she had difficulty contacting and unfortunately never thought to call 911 or his allergist.  The pediatrician told her to give him more Benadryl and explained that he could have an anaphylactic reaction, so she should watch him carefully.  My friend ended up sleeping on his bedroom floor listening for choking sounds all night.

Thankfully the next morning he was fine!  When he went downstairs to eat breakfast, her son happened to check the ice cream and what do you think he found?  You guessed it!

“Mom, there’s peanut butter in this ice cream!”, he yelled.

Needless to say, my friend was horrified.  Unbeknownst to her, peanut butter was listed on the label although it was not in bold and not listed separately.  Admittedly, she was in a rush at the grocery store and didn’t read the entire label. Like some of us have done at times, she merely scanned the label for bold words and an allergy statement.

That morning we had a long talk. I gave her some suggestions to hopefully prevent such an incident in the future and told her that they are very fortunate that he is okay given the sequence of events.

Afterwards she stated, “I think this should be a blog post!” to which I replied, “Definitely!”.

               

  • Read from the bottom up!

I always tell my kids, family and friends to begin reading labels from the bottom and look for an allergen statement.  If present, return the item to the shelf.  If not present, continue reading the entire label.

  • Enlist your child’s help.

Have your child read ingredient lists as well since another pair of eyes may help to prevent mistakes.  Additionally this gets your child in the habit of reading labels.

  • Double check ingredient labels prior to preparing food.

Reviewing ingredients a second time at home before eating/preparing food may help to catch an unsafe item that was previously missed.

  • If a suspected or actual ingestion occurs, follow your Food Allergy Action Plan.

Hopefully your doctor has provided instructions for suspected and actual ingestions both with and without symptoms which may include administration of Benadryl, Epinephrine and possibly calling 911.  You may get a blank form at the Food Allergy and Anaphylaxis Network.

  • Be a detective.

Allergic reactions generally occur within minutes to hours following an exposure.  Check the last food/beverage consumed prior to reaction.  My friend told me that if she had known the ice cream contained peanut butter, she would have given her son the EpiPen immediately and called 911.

  • Roll play with your kids.

Give your children different scenarios, and ask them questions such as “Who would you tell if you didn’t feel well after eating ___”, “What would you do next?”, “How could we prevent this from happening?”

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Food Allergy Care Package

FOOD ALLERGY CARE PACKAGE

Have you ever received a care package while at away at school?   Remember the cookies, candy or personal notes?  Sorry, no food here since we are dealing with food allergies, however I hope that some of these resources will be helpful along your journey.  It may seem like a long time between your initial allergy appointment and your first follow up appointment (it seemed an eternity for me when my oldest son was diagnosed).  Even if you have been dealing with food allergies for years, you may find some of these resources helpful during transitions and different phases of your journey.

When your child has been diagnosed with food allergies, the diagnosis and management can be overwhelming. Please realize that you are not alone! According to FAAN, 12 million Americans have food allergies including 3 million children. While it can be frightening and frustrating, it is doable. With time and education, hopefully the management will become easier and stress levels will decrease.

Accurate diagnosis and education are key. Make sure that a qualified physician, often an allergist, has diagnosed your child. Carry at least 2 EpiPens (full strength or Jr.) and carefully read ALL food labels. Learn as much as you can about food allergies and allergic reactions including prevention, recognition and treatment.  Educate family, friends and anyone with whom your child interacts.

There are many resources to help you, your child and your family /friends deal with the daily challenges of living with food allergies. Here are a few that I have found helpful. I call it my “food allergy care package”. 

Please realize that this is a partial list.  I have not read all of the food allergy books and each month new wonderful resources are being published and established online.  Feel free to add any resources you have written or found helpful.  Until next time…

                                                                                              Safety through education,

                                                                                              Donna

ORGANIZATIONS

FOOD ALLERGY AND ANAPHYLAXIS NETWORK (FAAN)

www.foodallergy.org

provides advocacy and education, free allergy alerts via email of food recalls

educational tools for children, parents, school system, annual conference

MEDICALERT

www.medicalert.org

Medic alert bracelets, necklaces etc. with your child’s identification number on the back which allows emergency personnel to contact you and obtain allergy information if you are not present

DEY PHARMA -EPIPEN

http://www.epipen.com/

video on how to use the EpiPen (can email to family and friends)

FOOD ALLERGY INITIATIVE

www.foodallergyinitiative.org

excellent source of information concerning multiple food allergies, funds food allergy research

 

ONLINE SUPPORT

PEANUT ALLERGY.COM

www.peanutallergy.com

parent run website with many discussion boards

KIDS WITH FOOD ALLERGIES

http://www.kidswithfoodallergies.org/

online food allergy support group

ALLERGY MOMS

http://allergymoms.com/index.php

support for parents of kids with food allergies

LOCAL SUPPORT GROUP LOOKUP

(FAAN) http://www.foodallergy.org/page/support-groups-lookup

ADULT RESOURCES

DVD

(FAAN) DVD-One Bite Is All It Takes!

great to share with spouse, babysitters, daycare providers, teachers, grandparents etc.

BOOKS /PAMPHLETS

Food Allergies for Dummies by Dr. Robert Wood

The Parent’s Guide to Food Allergies: Clear and Complete Advice from the Experts on Raising Your Food Allergic Child by Marianne S. Barber, Maryanne Bartoszek Scott (Contributor), Elinor Greenberg, Hugh A. Sampson

The Peanut Allergy Answer Book by Michael C. Young MD

What’s to Eat? The Milk-Free, Egg-Free, Nut-Free Food Allergy Cookbook by Linda Marienhoff Coss

The Food Allergy Mama’s Baking Book

(FAAN ) Pamphlet – Getting Started With Food Allergies: A Guide for Parents

CHILDREN’S RESOURCES

YOUNG CHILDREN’S BOOKS

Allie the Allergic Elephant : A Children’s Story of Peanut Allergies by Nicole S. Smith

Chad the Allergic Chipmunk: A Children’s Story of Nut Allergies by Nicole Smith

No Nuts For Me by Aaron Zevy                                                  

The BugaBees Friends With Food Allergies by Amy Recob

The Peanut-Free Café by Gloria Koster

One of the Gang  by Gina Clowes

No Lobster, Please! by Robyn Rogers

Cody the Allergic Cow: A Children’s Story of Milk Allergies by Nicole Smith

Mommy, Is This Safe to Eat? For Kids Allergic to Peanuts and Tree Nuts, 2nd Edition by Christina Black

Taking Food Allergies to School (Special Kids in School) by Ellen Weiner

(FAAN) Alexander, the Elephant Who Couldn’t Eat Peanuts (series)

(FAAN) How Lenny Found Out About His Food Allergy

(FAAN) Anthony Goes to a Restaurant

YOUNG CHILDREN’S DVDs

(FAAN) DVD Alexander the Elephant

(FAAN) DVD Alexander the Elephant Goes to School

OLDER CHILDREN’S BOOKS

The Peanut Butter Jam by Elizabeth Sussman Nassau

(FAAN) Kim Goes to Camp

(FAAN) Andrew and Maya Learn About Food Allergies

OLDER CHILDREN’S DVDs

(FAAN) DVD Friends Helping Friends: Make It Your Goal!

CHILDREN’S WEBSITE

(FAAN) www.fankids.org      

TEEN WEBSITE

(FAAN) http://www.faanteen.org

SCHOOL RELATED SITES

NATIONAL SCHOOL FOOD ALLERGY GUIDELINES -will be created

http://www.foodallergy.org/page/food-allergy-and-anaphylaxis-management-act-becomes-law

STATEWIDE GUIDELINES FOR SCHOOLS

(FAAN) http://www.foodallergy.org/page/statewide-guidelines-for-schools

FAAN 

www.foodallergy.org

section on managing food allergies in school

reproducible Food Allergy Action Plans for your child’s classroom

Safe@School Program

School Food Allergy Program (SFAP)

Off to School With Food Allergies, Teacher’s Guide (booklet)

Off to School With Food Allergies, Parent/Teacher (booklet)

MASSACHUSETTS DEPARTMENT OF EDUCATION

http://www.doe.mass.edu/cnp/2002/news/allergy.pdf

PDF document on Managing Life Threatening Food Allergies in Schools

FOOD ALLERGY TASK FORCE – SPOKANE WASHINGTON

http://home.comcast.net/~ifast/FATF.pdf

PDF document on Managing Life Threatening Food Allergies in Schools

CALGARY ALLERGY NETWORK

http://www.calgaryallergy.ca/article.html

numerous school related articles including parents, students and teacher’s guides, sample letters etc.

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Our story, in a nutshell…pun intended.

Suddenly, he began scratching uncontrollably which was followed by vomiting.  I knew at that moment Frank, my 18 month old son, was having an allergic reaction to a peanut butter sandwich.  I had been talking with my mother on the phone and recall telling her, “Mom, Frank likes peanut butter just like me!”

I hung up the phone immediately and called the pediatrician.  Since he was not having difficulty breathing and had no facial swelling, I was instructed to administer Benadryl and bring him to the office.  He looked fairly comfortable so I thought this was a mild allergic reaction.

On the other hand my mother, who was in another state, called 9-1-1.  She told them that they needed to help her grandson. Upon further questioning, they realized the child was over 1000 miles away.  They assured her that there were professionals a lot closer to help.  Funny how mothers usually know best!  

Anyway, I followed the nurse’s instructions and gave Frank the Benadryl.  He vomited the first dose which I followed with a quick second.  Grabbing the diaper bag, I flew out of the door and jumped in the car.  He was very quiet during the ride.  Fearful that he was having trouble breathing, I called 9-1-1 and was instructed to pull into an upcoming fire station. 

By that time, Frank’s symptoms had improved and they thought it was safe for us to continue to the pediatrician’s office. I recall him looking around saying, “Mommy, look at the fire engines!”  Upon returning to the car, he vomited all over himself.

We arrived at the office and Frank was soaking wet.  After a quick assessment, the nurse assumed a peanut allergy and gave us a referral to see an allergist.

We saw a local board certified allergist.  Physical, history and skin testing confirmed peanut and tree nut allergies. I got a crash course on food allergies, was told to avoid peanuts and tree nuts and was given a prescription for an EpiPen to save his life in the event of an accidental exposure.  On the way out, I made a follow up appointment for several months later. 

Fear, anger, and helplessness went through my mind. Why him?  What next? Am I to blame?   How am I to keep him safe? Can anyone out there please help me?

It can be frightening when your child is diagnosed with a food allergy. Stay tuned for my next post where I will share some of the resources that were beneficial to me. 

In the meantime, fast forward 5 years. During my second pregnancy, I ate no nuts of any kind hoping and praying that my child would not have nut allergies.  When he was about 6 months old, I saw eczema on his arms and face.  Wondering if he had a milk allergy, I took him to the allergist who delivered good and bad news.  He didn’t have a milk allergy but eggs, in addition to nuts, were now the enemy.  At least I knew about avoiding nuts, but eggs…they are a little trickier.  Avoiding eggs is not all it’s cracked up to be.  Last pun for now, I promise.  Until next time…

                                                                                                            Safety through education,

                                                                                                            Donna

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Welcome to Food Allergy Mom Doc

Hello!

I’m Donna DeCosta and I welcome you to my food allergy blog. 

As a married and working Mom of two wonderful children with life threatening food allergies, I have decided to use this blog as a tool to inform and support individuals and families living with food allergy as well as people who are dealing with food allergy in their professions as educators, school nurses, etc. 

Here you will read the stories of people I have met and interviewed as well as the lessons and challenges I have experienced with my children while managing their food allergies in the context of their very busy personal, school and extracurricular lives.

My blog will be rich with recommended resources and up to date with discussions about current headlines.  I’m a busy Mom and physician so I will keep my posts short.

My goal is to create a community around this serious health concern so that people do not have to go through it alone.  I welcome your input, and I hope that you will share your experiences and ideas. 

Pass the word so that we can grow strong as a community.

 

                                                                         Safety through education,

                                                                         Donna

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